A Letter to my daughter.

And, introducing my sister, Erin. LOL

Dear Erin,

There is something important I need to share with you.

Parkinson's is a challenging journey, both for me and for those who love me. It brings changes and uncertainties that can be frightening. I know that it’s not easy to witness these changes in me, but I also believe that together, we can navigate this path with courage and grace.

I want you to feel free to express your feelings, whatever they may be. It’s okay to be scared, angry, or confused. It’s okay to ask the hard questions. It’s okay to seek my support and to lean on others. Most importantly, it’s okay to talk to me about what you are going through. I am here to listen, and I want to understand your perspective just as much as I hope you will understand mine.

Living with Parkinson's means that there will be good days and bad days. There will be moments of frustration and moments of triumph. I am still the parent who loves you unconditionally. I delight in your achievements. I dream of your future.

Let’s make a promise to support each other. I will do my best to manage my condition and to stay positive, and I ask that you do your best to stay open and communicative. Together, we can create new memories, find joy in the little things, and embrace the love that binds us.

Most of all please know that I will never give up. I will continue to “Keep F’n Going” even during those hard days when I feel like giving up.

I love you so much it hurts sometimes. Your support gives me hope.

Ellen